Do you have difficulty swallowing or care for someone who does?

Exploring the experiences of people with dysphagia caused by stroke or Parkinson’s disease living at home and their caregivers

We are wanting to understand the experiences of people with swallowing difficulties, known as dysphagia, who live at home, and that of caregivers caring for someone with swallowing difficulties.

Why is the research being conducted?

To better understand how the needs of people with swallowing difficulties can be met by speech pathologists.

What will you be asked to do?

If you agree to participate, you will be asked to complete one (1) interview at a time and location convenient for you (e.g., in your own home). This should take approximately 45-90 minutes to complete.

If you have swallowing difficulties, you will be asked to describe and discuss your experience of living at home with these. If you care for someone with swallowing difficulties, you will be asked to describe and discuss your experience of caring for someone with these difficulties. You will be asked about your swallowing difficulty experiences, and will be encouraged to discuss challenges as well as aspects that have made living with swallowing difficulties easier. You will be asked to reflect on your experience of speech pathology services.

You will also be asked to complete a small series of checklists that ask you questions about your swallowing difficulty severity, your quality of life, the impact swallowing difficulty has on your quality of life and questions about how you are coping. These will take approximately 15 – 20 minutes to complete.


If you live the South-East Queensland region and you are interested in knowing more about the study, please contact Simone Howells either by phone (07) 5678 7663 or email [email protected]

Want more information?

Download the participant information sheets:

This project has been approved by the Gold Coast Hospital and Health Service Human Research Ethics Committee (HREC/17/QGC/207) and Griffith University Human Research Ethics Committee (GU HREC 2017/882).


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